Hello ! I've not blogged for a few days.
It's been 2 weeks since I had my first lump of chemo, and to be honest, Im not coping to well.
I have never been so tired. I get up at 8.30am and by 12 midday I'm ready for a kip. I did the hoovering a few days ago and suffered the next day, I played on Kinect Sports on the xbox yesterday and I'm absolutely knackered today.
I feel like I'm a burden to my family at the moment and really useless, it's even a friggin struggle going down stairs for a fag FFs.
My next chemo is on the 11th of may in out-patients for 4 hours then 4 days of tablets, and I'm not looking forward to it. My first lump was over 4 days and was watered down, the next lot is full fat over 4 hours ! So good knows what it's gonna do to me. I know my hair is on it's way because it's stopped growing, but I've got my hats now, so it can sod off.
So that's it for today, sorry it a miserable one today .... But you did want it warts and all !
Thanks for reading
Offski
- Posted using BlogPress from my iPhone
Wednesday 27 April 2011
Thursday 21 April 2011
The Venney
I grew up on a small estate with a pub The Flying Lady (named after the Rolls Royce mascot), and my local infant/junior school, Hungerford in Crewe. On this huge site, there was 2 school buildings,a nursery, a football field and a tarmac path widing the whole length of the site going through a tunnel half way. The rest was hills and fields.
In the late 70's Hungerford school decided they needed something for us todo in the school holidays, so 2 people were employed to run holiday activitys, using the nursey has a base. They were given some money for wood and tools, and the adventure playpark or the Venney has it was known was born. This play played a big part in my growing up in the late 70's, 80's and early 90's. It was brilliant, the holidays came and i would be up and out for 8am waiting for who was ever on that day, to help out and build stuff. I wasnt the only 1 either, there was at least 20 regulars, and we built eveything.
We built a fort on the highest hill, we had a 40ft slide down the other side. A huge metal rocket and a mono-rail put in by Rolls Royce due to all the kids parents worked there.
Our imaginations run wild, we built a wood shed, something we called the Haunted House and were even given an old railway carrige from British Rail.
We just didnt build stuff, we went on orginised trips on coaches and played games like 'capture the flag', 'british bulldog' and lots of sports all over the site. It was ace, when my brother was old enough i took him with me, and that was it Bignank and Littlenank were born. Every waking hour was spent there, helping out and messing around, parents didnt need to care then, they knew we would be back for tea.
We also had Bonfire night ! the week before we would make a guy and go 'penny for a guy' at the local shops, and we got good money too. All the money we made went to but the refreshments for Bonfire night party. We went around the estate collecting all the old wood and cardboard, and buy the time we finished we had enough for a big bonfire. It was organised ever year £2 a ticket and the whole estate came. The fire was lit at 6.30 pm, and the nursery opened to sell hot drinks, burgers etc. The Fireworks we set off at 7.30pm, and every year they bought 1 firework that we it exploded, it sent a dude in a parachute gliding of across the houses, and ever year there was a hoard of 20+ kids running after it to get it.
These years were probably the best years in my young life, and i will never forget it. I had my first drink there, i had my first ciggy there, it was OUR place we had built it.
But sadly, it was knocked down in 1998 and replaced with 40+houses for yuppies. I was gutted, we all were, there were a lot of tears in Crewe that day.
So that was it, the Venney was gone, but im still there in my head and that will never change.
Thanks for reading
Offski
In the late 70's Hungerford school decided they needed something for us todo in the school holidays, so 2 people were employed to run holiday activitys, using the nursey has a base. They were given some money for wood and tools, and the adventure playpark or the Venney has it was known was born. This play played a big part in my growing up in the late 70's, 80's and early 90's. It was brilliant, the holidays came and i would be up and out for 8am waiting for who was ever on that day, to help out and build stuff. I wasnt the only 1 either, there was at least 20 regulars, and we built eveything.
We built a fort on the highest hill, we had a 40ft slide down the other side. A huge metal rocket and a mono-rail put in by Rolls Royce due to all the kids parents worked there.
Our imaginations run wild, we built a wood shed, something we called the Haunted House and were even given an old railway carrige from British Rail.
We just didnt build stuff, we went on orginised trips on coaches and played games like 'capture the flag', 'british bulldog' and lots of sports all over the site. It was ace, when my brother was old enough i took him with me, and that was it Bignank and Littlenank were born. Every waking hour was spent there, helping out and messing around, parents didnt need to care then, they knew we would be back for tea.
We also had Bonfire night ! the week before we would make a guy and go 'penny for a guy' at the local shops, and we got good money too. All the money we made went to but the refreshments for Bonfire night party. We went around the estate collecting all the old wood and cardboard, and buy the time we finished we had enough for a big bonfire. It was organised ever year £2 a ticket and the whole estate came. The fire was lit at 6.30 pm, and the nursery opened to sell hot drinks, burgers etc. The Fireworks we set off at 7.30pm, and every year they bought 1 firework that we it exploded, it sent a dude in a parachute gliding of across the houses, and ever year there was a hoard of 20+ kids running after it to get it.
These years were probably the best years in my young life, and i will never forget it. I had my first drink there, i had my first ciggy there, it was OUR place we had built it.
But sadly, it was knocked down in 1998 and replaced with 40+houses for yuppies. I was gutted, we all were, there were a lot of tears in Crewe that day.
So that was it, the Venney was gone, but im still there in my head and that will never change.
Thanks for reading
Offski
Tuesday 19 April 2011
19/04/2011
Today is my Birthday, 19/04/1972 was me, so that means I'm 39 and so very nearly 40 ! but that's another story.
I'm blogging today because this morning i passed my 10,000 tweet on Twitter. Now i think this is a big deal !?! when i joined Twitter i always wondered how people managed to tweet 10,000 tweets, but after being on for a while, i understood how. Its very addictive (don't you think ?).
Anyway at the very start of this year 01/01/2011 i saved the tweet number i was on so i could keep an eye on what number i was doing. That number was 3467, from 10,000 leaves 6500 ish in 4 months (so yeah very addictive).
The reason i gave my 10,000 tweet to only the select few is because some have been through a similar thing, and others have helped lift my mood while in hospital having my chemo. There were other tweeters who helped but i didnt have the room so you might get one next time (11,000) !
Ive spoke to some amazing peepers on Twitter, and dare i say it, i can call some of them close friends.
I hoping to meet a few of you this year, in one way or another. Some of you dont live to far away, and we could always meet half way for the others, so be warned !
Anyway, thanks for reading this incredably short and boring blog today
Offski
I'm blogging today because this morning i passed my 10,000 tweet on Twitter. Now i think this is a big deal !?! when i joined Twitter i always wondered how people managed to tweet 10,000 tweets, but after being on for a while, i understood how. Its very addictive (don't you think ?).
Anyway at the very start of this year 01/01/2011 i saved the tweet number i was on so i could keep an eye on what number i was doing. That number was 3467, from 10,000 leaves 6500 ish in 4 months (so yeah very addictive).
The reason i gave my 10,000 tweet to only the select few is because some have been through a similar thing, and others have helped lift my mood while in hospital having my chemo. There were other tweeters who helped but i didnt have the room so you might get one next time (11,000) !
Ive spoke to some amazing peepers on Twitter, and dare i say it, i can call some of them close friends.
I hoping to meet a few of you this year, in one way or another. Some of you dont live to far away, and we could always meet half way for the others, so be warned !
Anyway, thanks for reading this incredably short and boring blog today
Offski
Saturday 16 April 2011
16/04/2011
Firstly, i need to publicly apoligise to the way i spoke to my beautiful girlfriend shelley on Thursday. I was bang out of order and for that im so very sorry.
Not done one of these for a couple of days, so here goes. They took me off my drip Wednesday night and said that that was it, and i would be going home the next day after the docs had been round about 10.30.
So the morning comes and im a little excited, i have my last set of bloods done, then i just wait and wait and wait. Then at 11.30 the staff nurse wonders in with an 8 hour drip and plugs me in. Well that was that i lost it and shelley got the lot.
I have most of my drip, then the docs turn up and say i can go home at 17.00. I was packed within 5 mins, to be told that i will still have to wait, so they can sort my pills out, maybe i should ring whoever was picking me up, to come at 17.30.
I didnt have anyone picking me up, i got my pills and got a taxi, which now i realise was a bloody bad idea.
I walked through the front door of home, and broke down (i dont do full on crying, but this was), i felt like death and told shell that there was no way on earth i was going back for my next lot of chemo.
Anyway i calmed down a little, and tried to explain about my pills, and took my load i needed to take. I went for a long hot shower and to have my first shave for 4 days, i looked like i'd eaten a bear and left it's arse hanging out.
I had been given 2 lots of anti-sickness pills, but the problem was they didnt work, so straight out of the shower to say hello to god on the big white telephone, i went to bed at 8.30 the earliest in years but didnt sleep much.
The Friday i was a little better and although i was sick in the morning, i managed to keep some mushroom soup down, and felt better. I had a power nap at 12 for 2 hours, but yet again didnt sleep much last night.
That brings me to now. I feel a bit better today so thought i would have a catch up, which ive done !
Thanks for reading
Offski
Not done one of these for a couple of days, so here goes. They took me off my drip Wednesday night and said that that was it, and i would be going home the next day after the docs had been round about 10.30.
So the morning comes and im a little excited, i have my last set of bloods done, then i just wait and wait and wait. Then at 11.30 the staff nurse wonders in with an 8 hour drip and plugs me in. Well that was that i lost it and shelley got the lot.
I have most of my drip, then the docs turn up and say i can go home at 17.00. I was packed within 5 mins, to be told that i will still have to wait, so they can sort my pills out, maybe i should ring whoever was picking me up, to come at 17.30.
I didnt have anyone picking me up, i got my pills and got a taxi, which now i realise was a bloody bad idea.
I walked through the front door of home, and broke down (i dont do full on crying, but this was), i felt like death and told shell that there was no way on earth i was going back for my next lot of chemo.
Anyway i calmed down a little, and tried to explain about my pills, and took my load i needed to take. I went for a long hot shower and to have my first shave for 4 days, i looked like i'd eaten a bear and left it's arse hanging out.
I had been given 2 lots of anti-sickness pills, but the problem was they didnt work, so straight out of the shower to say hello to god on the big white telephone, i went to bed at 8.30 the earliest in years but didnt sleep much.
The Friday i was a little better and although i was sick in the morning, i managed to keep some mushroom soup down, and felt better. I had a power nap at 12 for 2 hours, but yet again didnt sleep much last night.
That brings me to now. I feel a bit better today so thought i would have a catch up, which ive done !
Thanks for reading
Offski
Wednesday 13 April 2011
13/04/2011
The 3rd day of my big adventure seems to be going ok. I got a good nights sleep last night, apart from the old bloke across from me having a farting fit at 3.30am. They were proper room shakers too, thought he was gonna take off.
I had a night of the drip until 6am when I was put back on a flush.
Breakfast came and went and I was waiting for my 2 princesses to come and visit at 11, it got to that time when I heard a 'dadda ! Where are you?' , she never fails to make me smile whatever mood I'm in.
We escaped to go for my 1st fag (I'd run out at 10pm the night before), because I knew my 2nd dollop of chemo was on it's way. By the time we got back it was waiting.
This was a bigger dose than yesterday, and the first time Shelley had seen what it does to me. To be honest the first half hour wiped me out, we had dinner, the Whirlwind went on her rampage then they left.
This 2nd lot has really taken it out of me today, I've had several little kips this afternoon and had flu like symptoms but sod it that's life now, or it is if I want a longer one anyway. It's definatly taken something out of me, I'm knackered and I've only been for a ciggy !!
I'm hoping tomorrow is my last day in here, I just have to have a flush drip in the morning then I should be ok to go home.
So that's it, sorry its only short and sweet today
Thanks for reading
Offski xx
- Posted using BlogPress from my iPhone
I had a night of the drip until 6am when I was put back on a flush.
Breakfast came and went and I was waiting for my 2 princesses to come and visit at 11, it got to that time when I heard a 'dadda ! Where are you?' , she never fails to make me smile whatever mood I'm in.
We escaped to go for my 1st fag (I'd run out at 10pm the night before), because I knew my 2nd dollop of chemo was on it's way. By the time we got back it was waiting.
This was a bigger dose than yesterday, and the first time Shelley had seen what it does to me. To be honest the first half hour wiped me out, we had dinner, the Whirlwind went on her rampage then they left.
This 2nd lot has really taken it out of me today, I've had several little kips this afternoon and had flu like symptoms but sod it that's life now, or it is if I want a longer one anyway. It's definatly taken something out of me, I'm knackered and I've only been for a ciggy !!
I'm hoping tomorrow is my last day in here, I just have to have a flush drip in the morning then I should be ok to go home.
So that's it, sorry its only short and sweet today
Thanks for reading
Offski xx
- Posted using BlogPress from my iPhone
Tuesday 12 April 2011
12/042011
So day 2 of the adventure.
After I blogged last nite, THEY decided to hook me up to a drip. I have to have 2 12 hour bags and 3 8 hours ones to flush all the crap and toxins out of my body. The chemo is going to melt all the lumps but the toxic crap might go with it, straight to my kidneys, which in turn could shag them. So this is the reason I'm in for 3-4 days, so they can keep an eye on me.
I will admit to you all, that with all the waiting and worrying, I broke down last nite and had a good cry to myself. I was listening to Billy Joel on my iPod, and a song came on and that was it. I miss my family very much, and couldn't cope !
Anyway I think I feel asleep about midnight, but thanks to the arse on the other side of the ward , I got a broken 6 hours sleep. Plus I had the drip in still, so couldn't get comfy. I was woke at 6 am to have my blood pressure done, then stayed awake till breakfast.
At 10am I had some bloods taken, well I say some, it's was 12 blood bottles full Ffs, and it took 10 mins to do. So not a happy chappy.
11.30 came and Shelley came to visit, she looked beautiful has always. We chatted, I had my dinner of Cornish pasty and salad and at 1 (end of visiting) she left.
Now being a smoker has brought a bit of amusement to fellow tweeters, or the fact of me doing the great escape when I want 1. It's not the getting out, it's the fact I have my stabiliser with me (drip trolley), and the fact that out of 5 wheels none of them want to go the way I do !
Also there seems to be this thing that I'm a bit of a mischief maker, I don't know where this comes from, but it's not true... Well some of it's not true haha.
So my last break out has got me in trouble. Been for a cig and walking back to the ward, when the plug fell out of my drip. Half went on me and the floor, the staff nurse gave me a stern look and said 'that's why we don't let you wander off with the chemo' , but it was only that salt water flush stuff, thank god :)
I've had my first lot of pills, and chemo is on it's way. That sentence was wrote at 1.15 in the afternoon, I am back to waiting AGAIN.
The heavy stuff turned up at 4.15 pm, and has I write this I'm hooked up to my chemo, and already I'm feeling a bit funky.
So this is it. My body won't be the same again, and the battle with leukaemia begins.
My pills
Thanks for reading
Offski xx
- Posted using BlogPress from my iPhone
After I blogged last nite, THEY decided to hook me up to a drip. I have to have 2 12 hour bags and 3 8 hours ones to flush all the crap and toxins out of my body. The chemo is going to melt all the lumps but the toxic crap might go with it, straight to my kidneys, which in turn could shag them. So this is the reason I'm in for 3-4 days, so they can keep an eye on me.
I will admit to you all, that with all the waiting and worrying, I broke down last nite and had a good cry to myself. I was listening to Billy Joel on my iPod, and a song came on and that was it. I miss my family very much, and couldn't cope !
Anyway I think I feel asleep about midnight, but thanks to the arse on the other side of the ward , I got a broken 6 hours sleep. Plus I had the drip in still, so couldn't get comfy. I was woke at 6 am to have my blood pressure done, then stayed awake till breakfast.
At 10am I had some bloods taken, well I say some, it's was 12 blood bottles full Ffs, and it took 10 mins to do. So not a happy chappy.
11.30 came and Shelley came to visit, she looked beautiful has always. We chatted, I had my dinner of Cornish pasty and salad and at 1 (end of visiting) she left.
Now being a smoker has brought a bit of amusement to fellow tweeters, or the fact of me doing the great escape when I want 1. It's not the getting out, it's the fact I have my stabiliser with me (drip trolley), and the fact that out of 5 wheels none of them want to go the way I do !
Also there seems to be this thing that I'm a bit of a mischief maker, I don't know where this comes from, but it's not true... Well some of it's not true haha.
So my last break out has got me in trouble. Been for a cig and walking back to the ward, when the plug fell out of my drip. Half went on me and the floor, the staff nurse gave me a stern look and said 'that's why we don't let you wander off with the chemo' , but it was only that salt water flush stuff, thank god :)
I've had my first lot of pills, and chemo is on it's way. That sentence was wrote at 1.15 in the afternoon, I am back to waiting AGAIN.
The heavy stuff turned up at 4.15 pm, and has I write this I'm hooked up to my chemo, and already I'm feeling a bit funky.
So this is it. My body won't be the same again, and the battle with leukaemia begins.
My pills
Thanks for reading
Offski xx
- Posted using BlogPress from my iPhone
Monday 11 April 2011
11/04/2011
I've had an unusual end to last week and start to this week.
Sunday started with Formula 1 on the tv, and Shelley going to town. The whirlwind had other ideas about going having an afternoon nap. So we had play fights till mama got back, shell came back and gave me a bag. In the bag was an xbox Kinect, and it was an early birthday present (19th is my official birthday). Also it had a game with it , Dance Central. I connected it up straight away, and spent the rest of the day bopping and having a wicked time.
After that we had an awesome Sunday tea of roast chicken, which was delicious. I had a shower and settled down to watch 'the cube', keeping a close eye on twitter because the US masters was on. I got my way at 8.30 and the golf was put on.
Shell went to bed at 9.30 and I carried on watching the masters.
To my surprise my iPhone lit up with a message from @schofe (Philip schofield) wishing me all the best !
I replied saying thank you, then found out he was following :)
In previous blogs I've said about 'celebs' not answering back, but he did, so that kind of cool ?
Anyway I went to bed at 11, woke up with cramp in my foot at 2.30am then a wee at 4am. I got up at 7.30 feeling a bit rough.
The doctor had told me to ring ward 12 at 8.30 am to see what time to go in, to be asked for my phone number and a 'we will ring you' said down the phone.
The post came, and to my surprise there was a letter from Dr Rothwell to my own Dr, saying that I have lumps inside me all around my diaphragm, abdomen and neck, shoulders etc. Also that I have a enlarged spleen, which is something she forgot to tell me !
I rang ward 12 back at midday and was told the same thing, so now I sit and wait.
Got the phone call at 3.45 to go in, my bed is ready. Made it just in time for tea, which wasn't to bad really.
I've been poked and prodded by the dude that did my bone marrow. Also I've spoken to Dr Rothwell's number 2, he explained what's going to happen tomorrow and said the only reason I'm staying in, is because the chemo will melt all these lumps, but if they all let go at the same time, the toxins could knacker my liver.
I think the thing that's worrying is that after tomorrow my body won't ever be the same. From a temple to a ruin, but I guess that's the way it got to be.
So there you go, a funny 2 days really. I plan to tweet and read now :)
Thanks for reading,
Offski
- Posted using BlogPress from my iPhone
Sunday started with Formula 1 on the tv, and Shelley going to town. The whirlwind had other ideas about going having an afternoon nap. So we had play fights till mama got back, shell came back and gave me a bag. In the bag was an xbox Kinect, and it was an early birthday present (19th is my official birthday). Also it had a game with it , Dance Central. I connected it up straight away, and spent the rest of the day bopping and having a wicked time.
After that we had an awesome Sunday tea of roast chicken, which was delicious. I had a shower and settled down to watch 'the cube', keeping a close eye on twitter because the US masters was on. I got my way at 8.30 and the golf was put on.
Shell went to bed at 9.30 and I carried on watching the masters.
To my surprise my iPhone lit up with a message from @schofe (Philip schofield) wishing me all the best !
I replied saying thank you, then found out he was following :)
In previous blogs I've said about 'celebs' not answering back, but he did, so that kind of cool ?
Anyway I went to bed at 11, woke up with cramp in my foot at 2.30am then a wee at 4am. I got up at 7.30 feeling a bit rough.
The doctor had told me to ring ward 12 at 8.30 am to see what time to go in, to be asked for my phone number and a 'we will ring you' said down the phone.
The post came, and to my surprise there was a letter from Dr Rothwell to my own Dr, saying that I have lumps inside me all around my diaphragm, abdomen and neck, shoulders etc. Also that I have a enlarged spleen, which is something she forgot to tell me !
I rang ward 12 back at midday and was told the same thing, so now I sit and wait.
Got the phone call at 3.45 to go in, my bed is ready. Made it just in time for tea, which wasn't to bad really.
I've been poked and prodded by the dude that did my bone marrow. Also I've spoken to Dr Rothwell's number 2, he explained what's going to happen tomorrow and said the only reason I'm staying in, is because the chemo will melt all these lumps, but if they all let go at the same time, the toxins could knacker my liver.
I think the thing that's worrying is that after tomorrow my body won't ever be the same. From a temple to a ruin, but I guess that's the way it got to be.
So there you go, a funny 2 days really. I plan to tweet and read now :)
Thanks for reading,
Offski
- Posted using BlogPress from my iPhone
Thursday 7 April 2011
07/04/2011
Its been another exciting day in the world of Richnank. Another appointment at the hospital, this is the one for the deciding vote on which way they go on treatment.
We go by bus and the stop is only a short walk from the house. We stroll down, have a fag while waiting. Then this old woman comes wondering up to the stop and in a voice that can be only described has 'Borat's mother', 'are you waiting for the bus?' she asked all 5 of the people waiting the same question. Thankfully a bus came and whisked her off, leaving me and Shell chuckling to ourselves, with me doing a bad impression of Borat.
At the hospital we walk down to the blood place (sorry i don't know how to spell Hematology !), and walk in to say I'm here. 2 of the nurses already know me by my first name, so had a quick chat with them, then went and sat and waited.
Basically Dr Rothwell said that the gene results were back, and it would be the course of chemo that she said it might be. I also signed up for the trial they were doing, some new drug or something, sod it why not !
So Monday morning at 8.30 i have to ring Ward 12 to see if there is a bed, if so then I'm straight in, and stay in till Wednesday afternoon or possibly Thursday afternoon.
From what i can gather I'm to have a total of 6 cycles, each cycle lasts 5 days and repeated every 4 weeks. I'm to have intravenous chemo for one day, then something else pumped into me on the second day then tablets.
For the other 5 cycles I'm to go in for the day, then tablets for the other 4 days. Side effects don't look good, but i just got to man up and take it.
So there you go, now you know what i know. The next one of these will probably be from hospital, when I'm Bord off my tits !
And it looks like I've made it through this week without having some sort of needle stuck in me, which is always good.
Thanks for reading and all the support and 'Tweetment'
Offski
We go by bus and the stop is only a short walk from the house. We stroll down, have a fag while waiting. Then this old woman comes wondering up to the stop and in a voice that can be only described has 'Borat's mother', 'are you waiting for the bus?' she asked all 5 of the people waiting the same question. Thankfully a bus came and whisked her off, leaving me and Shell chuckling to ourselves, with me doing a bad impression of Borat.
At the hospital we walk down to the blood place (sorry i don't know how to spell Hematology !), and walk in to say I'm here. 2 of the nurses already know me by my first name, so had a quick chat with them, then went and sat and waited.
Basically Dr Rothwell said that the gene results were back, and it would be the course of chemo that she said it might be. I also signed up for the trial they were doing, some new drug or something, sod it why not !
So Monday morning at 8.30 i have to ring Ward 12 to see if there is a bed, if so then I'm straight in, and stay in till Wednesday afternoon or possibly Thursday afternoon.
From what i can gather I'm to have a total of 6 cycles, each cycle lasts 5 days and repeated every 4 weeks. I'm to have intravenous chemo for one day, then something else pumped into me on the second day then tablets.
For the other 5 cycles I'm to go in for the day, then tablets for the other 4 days. Side effects don't look good, but i just got to man up and take it.
So there you go, now you know what i know. The next one of these will probably be from hospital, when I'm Bord off my tits !
And it looks like I've made it through this week without having some sort of needle stuck in me, which is always good.
Thanks for reading and all the support and 'Tweetment'
Offski
Tuesday 5 April 2011
05/04/2011 Results
I woke up this morning, walked upstairs (cos we live in an upside down house), and my bad attitude was let lose on shell and the kids. I didn't mean to, just with what today was, i wasn't really feeling the morning. Shell went to work and i marched the brats up to school and was back for 8.30 to watch Lazytown with the Whirlwind. At 10.30 the Whirlwind was picked up and whisked off for the day, and left me on my own to stew in my own juices. By the time Shelley came home from work at 12.30 i was in more of a talking mood. We caught the bus to Huddersfield hospital and sat outside Dr Rothwell's room and waited.
I was called and off we went, she is a lovely Dr, she sat us down and it began.
I have been diagnosed with CLL , Chronic Lymphocytic Leukaemia. I have to go back to see her this Thursday because she was waiting for the genetic side of the bi-opsy which she needs so she can put me on the right Chemotherapy (there are 2 types). The Dr said i could be booked in to start it has early has the Friday of possibly Monday.
I will have to stay in for 3 days so they can monitor me due to the fact that CLL is an old persons Leukaemia and i am only 38 they are not to sure how it will affect me. This is non-cure able but also a 'grumbling' disease, so it means that, i have my treatment then possibly go for months or years and it all happens again.
The Dr also said that it was mentioned that because I'm young that, depending on how the treatment goes, i might have to have a Bone Marrow Transplant and can look forward to spending a whole month in Leeds while they do it FFS!
This also means getting in touch with my brother (who i haven't spoken to in years) to see if hes a match, and if he would help out.
So there we go, that's what i know. I now have to decided a couple of things :
1. What sort of head wear to get, due to the fact my hair will fall out. I'm not into the headscarf thing and a baseball cap don't look right, so was thinking maybe a fetching beret ?
2. The fact that shell will possibly have to give up work for a while.
3. Money
All of which i will sort out in my own time
Can i just say a big thank you to everyone on Twitter that has helped us both, even if its just a chat to take our minds off things.
You know who you all are.
Thanks for reading, when i know more, so will you !
Offski
I was called and off we went, she is a lovely Dr, she sat us down and it began.
I have been diagnosed with CLL , Chronic Lymphocytic Leukaemia. I have to go back to see her this Thursday because she was waiting for the genetic side of the bi-opsy which she needs so she can put me on the right Chemotherapy (there are 2 types). The Dr said i could be booked in to start it has early has the Friday of possibly Monday.
I will have to stay in for 3 days so they can monitor me due to the fact that CLL is an old persons Leukaemia and i am only 38 they are not to sure how it will affect me. This is non-cure able but also a 'grumbling' disease, so it means that, i have my treatment then possibly go for months or years and it all happens again.
The Dr also said that it was mentioned that because I'm young that, depending on how the treatment goes, i might have to have a Bone Marrow Transplant and can look forward to spending a whole month in Leeds while they do it FFS!
This also means getting in touch with my brother (who i haven't spoken to in years) to see if hes a match, and if he would help out.
So there we go, that's what i know. I now have to decided a couple of things :
1. What sort of head wear to get, due to the fact my hair will fall out. I'm not into the headscarf thing and a baseball cap don't look right, so was thinking maybe a fetching beret ?
2. The fact that shell will possibly have to give up work for a while.
3. Money
All of which i will sort out in my own time
Can i just say a big thank you to everyone on Twitter that has helped us both, even if its just a chat to take our minds off things.
You know who you all are.
Thanks for reading, when i know more, so will you !
Offski
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